Why hello there,
Welcome to your new everyday life bible.
No, that’s not a joke – I promise you that this will be your survival guide.
Your go-to for insight and personal experience into living with a chronic illness. Providing you with coping mechanisms when times are tough, tools for when things can be improved and positive vibes for when they’re needed most. Spoonie Survival Guide (S.S.G) will be your safe place and your creative space. Behind it myself, Kelsie, will be your new online best friend. I want to help you thrive no matter your circumstance and I’ll do it without judgement.
Firstly pop over here to read Spoonie Survival Guide’s Disclaimer – Please familiarise yourself before continuing on.
No one with a chronic illness should have to go about working things out on their own. This is why I am here. S.S.G dives into the symptom complex that is Fibromyalgia, however I welcome anyone and everyone who is battling a chronic illness, fatigue or even if you are feeling worn down and need some direction or a helping hand. This Survival Guide is designed to give you just that.
At Spoonie Survival Guide my aim is to improve your well-being by providing you with simple tools that you will be able to implement in your everyday life. This ranges from household organisation, quick meals, finance control methods and so very much more! We dive into your relationships – how to strengthen these and how to communicate with those you love about your illness. Believe me, I don’t want to exhaust your spoons, I just want to show you simple ways to manage your day. Heck, even make some of those tasks a little enjoyable!
But wait, you may ask –
What on earth is a Spoonie?!
Well – great question.
A Spoonie is often a term used to refer to people who are living with a chronic illness. The spoon is a unit of measure of which is used to measure a person’s energy bank. Spoon theory is a way of explaining how and where the energy goes – and more importantly why there is none left before the day is over!
Click over to the Spoon Theory page where it explains this more in-depth.
Spoonie Survival Guide was created to look past all of the venting and personal accounts that are everywhere online. (Don’t get me wrong, it’s important to read up and to know you’re not the only one going through this.) But what there is out there is a lack of simple tools to make this all manageable.
But what insight do I have to offer you?
I was diagnosed with Fibromyalgia at 19, where at the time I was living a very active lifestyle. Transitioning from being so able, to my now limited body and mind function is taking a fair bit of adjusting. On top of Fibromyalgia I have experience with chronic insomnia, PTSD, depression and anxiety. I’ve thrown myself into and out of debt, struggled to cook a meal from scratch and avoided social occasions like the plague. As a result of feeling so down I began searching for a ‘how-to’ fix. Unfortunately nothing gave me exactly that. I began to realise how complex this illness was and that there was no such thing as a fix.
A change in mindset was needed. From there I found ways to manage the symptoms through excessive trial and error. Believe me, I still love swinging by takeaways and splurging money on (un)necessaries when it all gets a bit too much! But that’s okay, because we’re all still learning and I’ve heard forgiving yourself is the best place to start.
“Start where you are. Use what you have. Do what you can.”
It’s time to stop just struggling through each day getting further and further behind.
It’s time to use the tools given to relieve some stress and anxiety from your life.
Finally, take a look around the site and flick through the pages of your survival guide.
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Jump over to the ‘contact me’ page and get in touch!
Really use this to help yourself.
You will thank yourself for it!
Believe me when I say I want nothing more than for S.S.G to be something you can turn to for help.
Furthermore if I can make even the smallest of positive impacts on your day, I will be uttermost happy.